
Measures that matter to ADRD patients and their caregivers

95 %
individuals with ADRD are managing chronic comorbidities
individuals with ADRD are managing chronic comorbidities
16 million
family members and friends serving as caregivers
family members and friends serving as caregivers
Alzheimer’s disease and related dementias (ADRD) affect 47 million people worldwide—a number expected to double every 20 years. Yet, research lacks diversity, especially for underrepresented populations, creating gaps in understanding how different communities experience ADRD and respond to treatments.
The core set of digital measures of ADRD provide you with metrics that connect technology to the real experiences of patients and their care partners based on DATAcc’s survey of the global ADRD community. Use these resources to enhance your trial process, ensure consistent data across studies, support diverse recruitment, and enable real-time insights for earlier, data-driven decisions.
Project partners and digital solutions collaborators
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In the news



Advancing Digital Approaches in Alzheimer’s Research and Care ft. Sarah Averill Lott, DiMe and Diane Stephenson, Critical Path for Parkinson
July 10, 2025

Digital Health Technologies for Alzheimer’s Disease and Related Dementias: Initial Results from a Landscape Analysis and Community Collaborative Effort
June 10, 2024
